The hemophilia patient of our country is only made a diagnosis and given treatment

The hemophilia patient of our country is only made a diagnosis and given treatment
The hemophilia patient of our country is only made a diagnosis and given treatment
It is reported ' Reporter Yang QiuLan) Learn from the promise held on January 30 and the second stage of donation ceremony of China's project of Noda's hemophilia fund, there are 65,000~13 ten thousand hemophilia patients in our country, but because doctors and patients both sides lack of understanding to hemophilia, a lot of hospitals can't diagnose independently, only more than 6000 people get insufficient making a diagnosis and giving treatment at present. Ministry of Public Health has already opened the administrative system of hemophilia in January of this year, has hoped through setting up the national and provincial hemophilia information administrative center, improve registration and information management of the hemophilia patient, standardize the diagnosis of hemophilia and treat, life quality of competence and patient of improving hemophilia and making a diagnosis. Hemophilia is a kind of inborn bleeding disease that lacks a certain blood coagulation factor in part or in whole, divide into, lack blood coagulation eight A type of factor ' Accounts for about 80% of the total number of patients) With lacking B type two kinds of nine factors of blood coagulation. Half the about is severe patients in the patient, the spontaneity incident frequently bleeds, known as " Glass people " . Treating through supplementing the blood coagulation factor lacked in time, even severe hemophilia patient can reach or be close to the life-span and life quality of normal people. But because treat and cost an arm and a leg, a lot of patients are difficult to bear. Ministry of Public Health the intersection of blood and the intersection of clothing and plum, division chief of, say network register system can go on summarizing to the patient actually real-time, standardize for the patient and treat and manages and establish the good foundation. Ministry of Public Health has already required every province of the whole country to set up the provincial hemophilia information center, from 2010, all provincial the intersection of information center and to set up the intersection of country and the intersection of registration and in the center of blood research institute report the data in Tianjin 1 every 3 months. Shanghai the intersection of Rui Jin and the intersection of hospital and XueFeng Wang, head of the department of blood transfusion, introduce, since promise and the intersection of Noda and the intersection of hemophilia and the intersection of fund and the intersection of China and the first stage of project at start 2006, set up, include 6 hemophilia treat centre cooperate group and national hemophilia patient register the system in work by hemophilia inside already in the whole country, register 6200 patients. The second stage of Chinese project will set up the hemophilia laboratory to diagnose the national quality certification system, increase the new hemophilia rescue center, expand coverage rate that comprehensive care shows loving care for.


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