Our country was born a disabled baby every 30 seconds 1 200 000 inborn defects every year

Our country was born a disabled baby every 30 seconds 1,200,000 inborn defects every year
Our country was born a disabled baby every 30 seconds 1,200,000 inborn defects every year
Grow a healthy baby, to youth of reproduction age, the expectation that more normal, however, to quite a few of people, this kind of expectation, has become extravagant hope - -There are data that indicate, about 1,200,000 neonates have inborn defects, congenital deformity every year in our country. 1,200,000, that is to say, every 30 seconds, our country increases a disabled baby newly, mean having a family to endure the agony to the fullest extent. The figure is heavy, but agony and injury that the inborn defect brings to family and the society, how heavy is it on earth? What kind of precautionary measures should take? CCTV " Weekly Quality Report " surveys this. First, torment the person " The nerve is in charge of the deformity " Very some healthcare hospitals for women children of Shanxi particularly in the northern province, often some children are perplexed by enuresis, some young men are tormented in severe pain by a kind of strange pain in the back, even hit " Close " Come to ease pain. This day morning, doctors are found after checking by student and the youth of a piece of pain in the back of a piece of enuresis, two people's backbone both have a small crack. The doctor introduces, such small obscure crack lets the recessive backbone split on the backbone. Children's enuresis, at least more than ten percent of the influence split by recessive backbone; And adult have whom recessive backbone split quite a few, probably accounts for 3%. Unfortunately, split after having the recessive backbone, enuresis, knew pain in the back after growing to manhood even if not as a child, and aggravate gradually, all one's life of agony. The expert introduces, it is that the nerve is in charge of the odd-shaped inborn defect that such recessive backbone splits, lightest one of symptom. Inborn defect: The existing body structure or function was unusual to refer to foetuses before being born in, this kind unusually appears to have early late. It is in foetus' development that the nerve is in charge of the deformity, because the nerve which is responsible for development of central nervous system is in charge of not closing completely, a kind of inborn defect caused, it is one of the most serious inborn defects in the world too. The expert introduces, it is apt to cause foetus death that the nerve is in charge of the deformity, even if the foetus survives, also unavoidable life agony. The reporter finds in investigations such as Shanxi, Shaanxi and other places, the nerve is in charge of the odd-shaped defect and born, often abandoned. Even if nerve in charge of odd-shaped defect grow up, destiny is still bumpy. Little 13 -year-old Yan's miaow, because the nerve is in charge of the deformity, the sacral bone vertebra seat is longer than a very large neural cyst, her lower extremities are nearly paralysed. The doctor says, cyst will also grow up with little Yan's miaow together, once the damage threatens the life. The reporter notices, some severe nerve is in charge of the odd-shaped defect, regardless of whether or not perform the operation, it is very easy because the nerve is damaged and disabled. What this individual established helps it just in the centre, because the child that the nerve is in charge of causing disability in deformity has taken nearly half. The operation wound of these children has been good for a long time, but it may be a dream to walk forever. Reporter: Then you have any idea, grow up afterwards? The nerve is in charge of the odd-shaped patient: "Want to go. " 31 provinces, obstetrical department of more than 460 hospitals of 132 cities and counties to the whole country throughout the year of monitoring center of inborn defect of our country, monitor the inborn defect. Found finally, the nerve of our country was in charge of the deformity and take place whole high, the incidence was about 10/10000 on average, in the high position in the world. The inborn defect Zhu Jun, Deputy Director of monitoring center in China: "Especially our Shanxi, Shaanxi, Gansu, Inner Mongol, the province of the North, its nerve is in charge of the incidence of the defect, is well-above the average level of the whole country. Even arrange in the whole world in forefront. " The nerve is in charge of the odd-shaped inborn defect to bring heavy spirit and financial burden to family and the society. The annual our country is in charge of up to 200 million yuan of direct economic losses of deformity because of the nerve. Second, every year and 7 billion ones that lose " Tang's' syndrome " Reporter's investigation finds, our country's neonatal life and healthy while in charge of the deformity the nerve and encroach on seriously, still face the serious threat of another kind of inborn defect, the chromosome that namely the foetus bore the weight of the genetic code on one's body morphs, lead to the fact the unusual defect of the function such as Tang's' syndrome, the mongolism, it is one of them. There are more than 400 chromosome disease, syndrome that the mankind has already find been, the face is dull-witted, intelligence obstacle and development are slow it is nearly common characteristic, and Tang's' syndrome defect intelligence is especially low. According to expert, at present, it is high in charge of the deformity in syndrome incidence such as nerve of Tang's of our countrying, it is about 10/10000, far exceed the nerve to manage the deformity in but the direct economic losses caused every year, reach 7 billion yuan. Third, every year and 13 billion ones that lose " Congenital heart disease " Though the nerve in charge of deformity, Tang's' syndrome to make people difficult to bear soes, however, reporter's investigation finds, and the incidence is higher, endanger more serious inborn defect, the ones that become and wreck the life are stupid and fierce. This baby lying in rescuing the room, only born in an hour, the skin was livid purple, the life hangs a gleam of. Shanxi pot imprison the intersection of county and the intersection of healthcare hospital for women children and Zhao, attending physician of pediatrics, celebrate: " the normal sound is on the left side (thorax) Most strong, he to find most strong in right side, through odd hours such as oxygen intake after we give he, he does not improve all the time, considers he has serious congenital heart disease. " 5 hours later, this flower of neonate's tender life withered, the devil is congenital heart disease - -The bad inborn defect that causes of a kind of foetus' heart development, it is primary cause of disease of neonatal natural death of our country too. The relevant monitoring data of Ministry of Public Health showed, from 2005 to 2007, the incidence of congenital heart disease of our country had already exceeded 24/10000 for three years in succession, rank the first in all inborn defects, send at most in the whole country. Every year bring the enormous agony to numerous families of our country, in addition, cause the direct economic losses to be up to 13 billion yuan, it is more than 60 times that the nerve is odd-shaped. Deformity of the foetuses of 5% that fourth, inborn defect remain high Reporter investigation find pregnant woman enclose check, produce proportion of inborn defect, far go beyond imagining childbirth period. The healthcare hospital for women children of Beijing Haidian sifts and looks into the centre director hertz and flies before production: "Ones that found abnormality among the pregnant woman checking are very many too. Now, sift finding foetus' odd-shaped proportion is 5%, have an unusual one, 100 have 5 and have abnormal conditions, such a big proportion, now, the ones that isn't it that people imagined do not have great thing while being pregnant to say, it is not such. " Compared with some American-European countries, our country's present inborn defect incidence takes a lot higher. Chinese medical science moment is scientific in the west second director Wang Meng in China, Sichuan of group's Vice Chairman: "On later stage of the eighties of last century, the inborn defect of developed country, the incidence had already dropped to about 3%, and the inborn defect at present of our country Rate is still up to about 5%. This disparity is bigger, we can't avoid the question, because the incidence is high, also explain the potentiality that we can prevent very? Ma! ? Expert reveal since monitoring the inborn defect in 1986, of our country neonatal inborn defect in high to take place the state nearly all, 2 years ago, nearly 30 million families bore the defect, accounted for 1/ 10 of national family's total number, that is to say, there are about ten percent of the families early in the whole country, are bearing or still bearing the agony that the inborn defect is bringing. Moreover, this kind of misfortune is also expanding now. Our country was born in 20 million neonates every year, calculated according to 5% inborn defect rate, mean every 30 seconds, our country increases a defect, increase about 1,200,000 people of inborn defect newly every year, have all caused heavy mental burden and economic losses to patient and family. The inborn defect Zhu Jun, Deputy Director of monitoring center in China: "It is 3 main deformity these that reach, spend direct the intersection of economic losses and 200 more than more than pieces of country every year, then, more, if as many as ten thousand kinds of deformity added up, then this economic losses are very heavy. " Reporter's investigation finds, the neonatal inborn defect not merely sweeps across our country, even whole world has already fallen into its tight encirclement. At present, the neonate with serious defect accounts for the world and was born in the total population about 6%, will increase no less than 7,900,000 people every year, among them nearly half would die 5 years old ago, 3,200,000 defects will be turned into lifetime deformity. Look for the pathogenic factor of the inborn defect in time and prevent and cure actively, it is a difficult problem that countries all over the world face. Fifth, inborn defect reason: 10% of the environments worsen factors of 65% of the pregnant women of 25% of the inherent causes The reporters can all run into the abandoned baby that just sent here in investigations of welfare home such as Shanxi, Hebei and other places. According to Lu GuiYing in the welfare home of Taiyuan, a disabled child sends here every day, among them 85% are all disabled children. This is that national welfare homes generally face accommodating a epitome in the pressure enormously. In recent years, our country has issued a series of laws and regulations such as " law on health care of mother and baby ", " population law ",etc. successively, meanwhile, departments such as Ministry of Public Health, the Ministry of Science and Technology,etc. organize expert's scientific research and key research project tackling in succession, look for the high hair reason of the neonatal inborn defect. The experts pay close attention to the fact that it causes the pressure of the inborn defect to strengthen constantly because of the deterioration of the environment to get to our country at first. The inborn defect Zhu Jun, Deputy Director of monitoring center in China: "Our country's inborn defect takes place seriously high, have close relations with a lot of factors. According to environmental factor, we should manage our environmental pollution, make our environmental pollution improved gradually, thus reduce our women of child-bearing age, the pregnant woman is exposed the environmental adverse factor to the open air, impact on foetus. " Natural environmental factors such as polluting, strong radiation,etc. again, changing with the human chromosome, even gene mutation, there are close relations to cause the inborn defect, some even cause foetus' structure to change directly. The expert points out, pregnant woman's gestation is in three months, frequent contact microwave and radioactive rays,etc., the foetus suffers from " Harelip " Possibility big increase. The environmental factor probably accounts for 10% of the overall reason of the neonatal inborn defect. The experts find, another even more important reason is an inherent cause after studying. As everyone knows, consanguineous marriage, it is easy odd-shapedly for the offspring. However, more deformity does not stem from consanguineous marriage. Even if parents are normal, the foetus might make a variation because of the chromosome even, or gene mutation, cause the inborn defect. Children of these inborn defects have a hereditary gene of deformity, some displays the deformity on one's body oneself, some separate and take the place of appearing. Studies have suggested, for example if either parties of men and women suffer from the nerve and is in charge of the odd-shaped defect, their future generation suffers from the nerve and are in charge of the odd-shaped danger and increase by 10 times. The population base of our country is large, it is relative and high to manage incidence of inborn defect such as the deformity the nerve, the accumulation effect for many years, make the overall incidence of the inborn defect raise accordingly. Chinese medical science moment is scientific in the west second director Wang Meng in China, Sichuan of group's Vice Chairman: "Look from the situation taking place in neonatal inborn defect at present, the influence of the inherent cause is not small, remain a more important factor, the proportion which it accounts for is probably in 25%, that is to say that probably 1/4 of the inborn defects are all involved in inherent cause. " Besides inherent cause and environmental factor, pregnant woman's own physiological factor, become the focal point that the expert studies too. In the physiological factor, what researchers paid close attention to at first is that pregnant woman's age changes the factor. Because women are when she is still the foetus, the total number of ovums has already been fixed, after growing up, with the increase of age, the ovum is influenced by external factor the greater. The experts discover: The older men and women's age is, the higher the foetus suffers from congenital heart disease, nerve and is in charge of the risk of inborn defects such as deformity, harelip,etc.. Women bear than 30 years at 40 years old " Harelip " 20% with high risk of the defect; It is 1/1100 that the pregnant woman 25 years old bears the probability of the defect of Tang's' syndrome mongolism, in 35 s, the risk is sharply increased to 1/380. Once age ages 3 years again, the risk doubles again, it is 1/175. 40 years old later, the risk is higher. Can't ignore, behind the intersection of our country and high to take place inborn defect, advanced age the proportions of pregnant and parturient women are increasing progressively fast. The neonatal inborn defect Zhu Jun, Deputy Director of monitoring center in China: "In 1996, this proportion of lying-in woman's over 35 of our, only accounted for 3%, then to the most recent two years, may account for 10%, about 10%. So such a proportion increases, what the lying-in woman brings at advanced age, it is the emergence of the inborn defect, the risk increases too. " While the lying-in woman increase at advanced age, the women of child-bearing age " internal milieu " Worsen, the pregnant proportion in spite of illness is not small. Researchers have specially carried on research to serum of 2000 pregnant women in Henan Province, find a lot of pregnant women store in palaces such as clothing original body, bow-shaped worm, and nettle rash and virus,etc. and is infected with symptom, the foetus has already infected and encroaches on seriously at this moment, increased foetus' deformity, even risk dying greatly. The doctor introduces, it is through spreading through sex intercourse, have hands, the eyes when contacting a kind of common disease that spread that the clothing original body is infected, ordinary people have been infected with this kind of disease, sometimes will heal by oneself, but women bring this kind of disease is pregnant, it may be a disaster to the foetus, a lot of people know nothing about but this. The clinical data of the hospital reveal, the original body of clothing of trachoma infects woman's proportion a bit high, up to 25% at most, every four people, one catch an illness. Very common bow-shaped worm's disease of another kind, it is that one is threatened seriously too to the foetus. Bow-shaped Worms generally exist in the nature, people eat meat-roasting usually, even it is very apt to be infected with the bow-shaped worm's disease to contact pet and excrement,etc.. The healthcare hospital for women children of Haidian of Beijing tests chief of the office Lu Xin: "Having infected the bow-shaped worm, we work it out probably about 8%, only 8% bow-shaped worm's infection rate. " The pregnant woman is low because of immunity, the bow-shaped worm initiates complication very easily in the body, and then influence foetus' health. The healthcare hospital for women children of Haidian of Beijing tests chief of the office Lu Xin: "Mainly produce one kind and cause lopsided function to the foetus. Especially infecting in the bow-shaped worm that is pregnant within early three months, will cause the foetus' deformity. For example infection of the nervous system, will cause the foetus' small head, mainly the foetus' brain has happened unusually, and some deformity of eye, it is mainly amblyopia, and some visual obstacles. " Except lying-in woman increase, more, in the physiological factor pregnant woman by pregnant proportion in spite of illness advanced age, another important influence factor is that the pregnant woman has out-of-balance nutrition, lack some nutrition elements to lead to the fact the inborn defect increase. The expert discovers, nerve such as Shanxi, Inner Mongol are in charge of the high northern area that takes place of the deformity, woman lack folic acid seriously generally, folic acid level whom the South take place regional the intersection of woman and the intersection of folic acid and level while being low 1/3 about only. Folic acid is one kind of vitamins, the main source is the fresh green leaves vegetables in the diet, and the citrus fruit,etc.. As soon as the pregnant woman lacks folic acid, the pregnant woman lead to the fact motive force is insufficient when the nerve is in charge of development, the nerve appears and is in charge of the odd-shaped defect. The experts study to still find, besides some unidentified factors, pregnant woman's depressed and bad hobby of smoking, drinking etc. before being pregnant, also one of the factors which causes the inborn defect. So far, the existing preliminary result of study shows, the neonatal inborn defect of our country takes place high overall, roughly influenced by three major factors: The environmental factor accounts for 10%, the inherent cause accounts for than about 25%; And the pregnant woman's physiological factor and some factors with unidentified reason account for 65%. In the pregnant woman's physiological factor, pregnant woman's proportion is strengthened with advanced age, the pregnant number of people increases in spite of illness, and nutrition is out-of-balance lead to the fact it is the most influential that the nutrition element is scarce,etc.. This line of factor influence in coordination, result cause of our country the intersection of infant and pre-school children and inborn defect occupy, down while being highly difficult. Sixth, " three lines of defence " It is three major factors that take place high to prevent the inborn defect to the inborn defect, health care before being pregnant that our country has formed progressively in practice, sifting checking, and newborn child's illness is sifted and looked into etc. before production " Tertiary prevention " The measure, namely " three lines of defence " ,Prevent, intercept the emergence of the inborn defect with all strength. The premarital checkup is the key to preventing inborn defect, it is the youth of reproduction age that accepts that mends the best opportunity of health knowledge such as folic acid before heredity is consulted, pregnant too. However, reporter's investigation finds, quite a lot of defect parents have not done the premarital checkup exactly, have missed the chance, therefore has brought the endless trouble. In fact, since our country cancelled forcing the premarital checkup in 2003, the number of people of the premarital checkup is reduced sharply, the annual premarital checkup exceeded some healthcare hospitals for women children at county level of a thousand in the past, nowadays, the voluntary premarital checkup rate is even zero every year. Even if is big cities such as Beijing, Guangzhou to offer the free premarital checkup,etc., the number of people of the premarital checkup glides seriously, the premarital checkup rate of last year of healthcare hospital for women children in Beijing Haidian is less than 5%. Because a lot of people do not do the premarital checkup, undoubtedly become a great hidden danger of the inborn defect. This slip that this line of defence exists to health care before being pregnant, the healthcare hospitals for women children of some large and medium cities such as Beijing, Guangzhou, Shanghai, Taiyuan,etc. have proposed and launched in succession " The physical examination before being pregnant " Medical health service, make " patches " . The reporter finds in the investigation of healthcare hospital for women children in Haidian of Beijing, after the health service of physical examination through being pregnant, pregnant woman carry on inborn defect sift, check, come, reach, find, interfere from early early while being antenatal, reduce the severe inborn defect foetus' purpose to born. Limited by the medical condition, " sift checking before production " This second line of defence is unable to sift and find all inborn defects. Such as the dysaudia, and the dementia inborn defect caused by the inborn thyroid gland function is low, benzene acetonuria disease,etc., often take in the third line of defence, namely" newborn child's illness sifts checking " China, could sift finding out, in order to treat in time, reduce the intensity takes place in the deformity, strive for valuable time. However, the reporter notices, are limited by objective condition, three lines of defence of inborn defect are not high in the coverage rate in all parts of the country, for example newborn child's illness sift check not only number checked to sift little, but also coverage rate only 48% at present, and developed countries such as U.S.A.,etc. sift and check number more, exceeds 90% in coverage rate. Prevent the inborn defect, it is not merely a thing of the government definitely, need public scientific cognition and participation actively even more. The inborn defect is the great public health question which the whole world pays close attention to very much, and our country the intersection of world and the intersection of inborn defect and the intersection of rate and hotspot one of, begin 2006, confirm will it be September 12 every year for " prevent day such as inborn defect " ,High resolution that takes place of rate of embodying the country and stopping the inborn defect. Prevent and cure the inborn defect, improve life quality, concern the quality of the population, concern our national the rise and decline and country in the future. Need every reproduction age youth to tighten and prevent this string of the inborn defect, study and make good use of the precautionary measures of the inborn defect, bear the healthy baby.


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