It is scarce to deposit the organization The self-closing disease patient parents worry children's future

It is scarce to deposit the organization The self-closing disease patient parents worry children's future
It is scarce to deposit the organization The self-closing disease patient parents worry children's future
"If I leave this world in the future, what will the child do? " These are a lot of self-closing disease children parents' worry. The reporter training, in recent years, situation of the above growth that it is the triple to go to the hospital to make a definite diagnosis of or accept and recover the self-closing disease children of training, a few days ago. According to the introduction of sanitarians of children, the related departments investigate to the morbidity of self-closing disease that comes out 1/1000 for the previous period in our country, investigations were shown 6/1000 recently, and according to the incomplete statistics of Guiyang, there are 3000 self-closing disease children at least at present. Though some self-closing disease rehabilitation institutions have solved the problem that the self-closing disease infant has recovered to train in early days at present, but enter the self-closing disease patient of the school age with even old stage, lack and can accept the outlet recovered and found a room for, it future is troubling. Expert: Self-closing disease children need parents to accompany and attend to recovering the reporter of love home of training centre at self-closing disease of the market of Guiyang to see all the life, it is the children under the age of 6 to come here to accept and recover most children of training, recover teacher in here one to one or going on, training to them one - to - two, each child has parents who are accompanied. These children not what people imagined is so quiet, some cry and scream ceaselessly, the order that some can't accept the teacher runs arbitrarily everywhere. According to the long introduction in the home Zhao Yuan of the love, self-closing disease (also call autism) ,It is one of the most serious diseases in development obstacles of children, its central question is the social communication obstacle, these children 80% follow intelligence low, 10% of the intelligence is fair, 10% of the intelligence goes beyond the normal condition, they are unwilling to exchange with people, indulging in one's own world all day, most children do not talk, the self-care ability of life is lack of, learn to have obvious obstacles, desire and ability which is exposed to the fresh things are relatively weak, the serious one will also have it from incomplete or violence inclination. Zhao Yuan tells reporters long, so far, autistic patient who has not an example has already cure been in the whole world yet, can only be through training incessantly for a long time, promote patient's adaptive capacity that incorporated into society. And training and maintenance of self-closing disease cost often more surprisingly large, lifetime recovery and maintenance of type nearly lose and work by a lot of parents, let life orbit and destiny of a family be totally changed, what the ones that become a lot of families can't bear is heavy. In the love home, there are a couple since caught a pair of twins who suffer from self-closing disease, the wife nurses children at home, the husband goes out to work as a temporary labourer alone, because is hard up, can only send symptom among them to the love home and accept training about a bit lighter child, another one sends to Zun Yi and fits the countryside and lets the old man guard. Child's mother says: "It was a greater part of that training fee of 1650 yuan spent husband's salary in one month, life is difficult to bear. " Another young mother is accompanying a little about boy 3 years old to train, the teacher tells reporters silently, this mother gives birth to two children, the old girl is normal, the little boy is self-closing disease, its husband can not bear the self-closing disease son's heavy load, divorce her to leave with the daughter, because should accompany the child to be unable to work by oneself, life depends on one's own parents' subsidy completely. In the face of the future, a face of hers is melancholy, ignorant and helpless. Parents: Do not dare to face up to in the future and most afraid the child grows up self-closing disease needs someone lifetime to nurse, a lot of parents are difficult to face this reality. A self-closing disease child's mother says, when the son is two years old, she quited the work, came down in 5, cost more than 100,000 yuan. "I afraid he grow up, he I can also look after him as a child, but when we are old or leave this world most now, what shall he do? " Speaking of the future, even stronger parents will be sad too to shed tears. What shall we do about the child after growing up? These are that a lot of parents worry about the question that is most afraid of facing straightly most. Worry about the child for living a difficult to take care of oneself life at first. It is reported, quite a few have stayed at home since closing the disease child and growing up, life is still looked after by parents. 30 -year-old self-closing disease patient Xiao Zhang and symptom belong to the slight one, but he does not associate with anyone, none of friends, been living under parents' protection all the time, he will make some things impervious to reason if careless, abuse others are or baffled to get angry, its mother says his social ability is only under 10 years old for no reason, what life she does not dare to imagine while only having the son left alone in the future. Besides afraid the child's employment is difficult to ensure, the self-closing disease patient passes special training, can only be engaged in some simple and repeated work under someone's treatment, but the work to be found and is suitable for like this is very difficult, their economic source should still depend on parents. It is to afraid to have they can't marry and give birth to babies, they do not have anyone who has got married. Often there is no marriage because the spouse requires he can realize others' emotion, and there is input of more emotion, but this is what an autistic obstacle patient can't offer. Appeal for: The government should take the lead in setting up and depositing the organization at present, as to autistic children, government department and non-government organization of our city have already paid close attention, and established early training to treat the organization, such as the recovery centre of Association for the Handicapped in the province, the love home of Guiyang, but the recovery of adult's self-closing disease is trained and constructed at present it is still the vacancy. Have persons of parents collect a lot of about find after suffer from the autistic child and enter adolescence behind the autistic materials, will present some aggressive behaviors more or less, some even develop into very serious stage, obviously go beyond the managerial ability of the family. Many families have to send the child to the insane asylum in at a loss what to do cases, and some families of financial difficulties, have to turn one's own family into " prison house " . One parents say " should have first organization to different from the insane asylum, specially have the autistic child in one's care. " A lady whose surname is Huang calls to tell reporters, she is a self-closing disease girl's mother, she says some that she visited self-closing disease in Guangzhou not long ago deposits the organization, confident of one's own daughter's future. According to her introduction, not merely there are the self-closing disease child's recovery training institutions in Guangzhou, and the intersection of adult and the intersection of self-closing disease and employment of patient deposit centre, if Guiyang set up such organization, solve the worry of a lot of self-closing disease patients family. Experts, parents, the society pay close attention to the fact the personages call upon one after another, to this part of people increasing day by day, should led by government, establish one organization, incorporate training, teachers, scientific research, helping the autistic patient to recover into an organic whole, in this way, can adopt the technology of the most forward position, offer better services to autistic patient. (reporter Nie Ying)


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